Development and validation of the Epilepsy Self-Stigma Scale.

ABSTRACT:

Objective

Self-stigma is the internalization of negative public attitudes and is often experienced by patients with epilepsy (PWE). Greater self-stigma is associated with lower self-esteem and hinders therapeutic behavior. The study aims were to develop the Epilepsy Self-Stigma Scale (ESSS) to assess self-stigma in PWE and to examine the scale's reliability and validity.

Methods

We created a test scale based on items from an existing stigma scale and the results of a previous qualitative analysis we conducted. We recruited 200 outpatients from departments specializing in epilepsy (psychiatry, neurology, and pediatric neurology) at four facilities in Tokyo and Saitama prefecture, Japan, between September and December 2020. Participants also completed the Rosenberg Self-Esteem

SUBMITTER: Kuramochi I 

PROVIDER: S-EPMC8633466 | biostudies-literature | 2021 Dec

REPOSITORIES: biostudies-literature