Examining access to care in clinical genomic research and medicine: Experiences from the CSER Consortium.

ABSTRACT:

Introduction

Ensuring equitable access to health care is a widely agreed-upon goal in medicine, yet access to care is a multidimensional concept that is difficult to measure. Although frameworks exist to evaluate access to care generally, the concept of "access to genomic medicine" is largely unexplored and a clear framework for studying and addressing major dimensions is lacking.

Methods

Comprised of seven clinical genomic research projects, the Clinical Sequencing Evidence-Generating Research consortium (CSER) presented opportunities to examine access to genomic medicine across diverse contexts. CSER emphasized engaging historically underrepresented and/or underserved populations. We used descriptive analysis of CSER participant survey data and qualitative case studies to

SUBMITTER: Gutierrez AM 

PROVIDER: S-EPMC8634302 | biostudies-literature | 2021

REPOSITORIES: biostudies-literature