Designing Support Structures Post Sepsis in Children: Perspectives of the Queensland Paediatric Sepsis Program.

ABSTRACT: Introduction: Paediatric post sepsis syndrome is poorly defined and causes physical, neurocognitive, psychosocial morbidity, and family dysfunction. Families of sepsis survivors report unmet needs during care. Worldwide, the provision of post sepsis care is in its infancy with limited evidence to design clinical support pathways. Perspective: The Queensland Paediatric Sepsis Program (QPSP) developed a family support structure (FSS) to improve care during all stages of childhood sepsis. It was designed in partnership with consumers guided by information from consumers and it is partly delivered by consumers. Key areas include online, multimodal education for families and the ability to connect with other families affected by sepsis. The FSS is delivered by a multidisciplinary

SUBMITTER: Raman S 

PROVIDER: S-EPMC8636900 | biostudies-literature | 2021

REPOSITORIES: biostudies-literature