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From biobank and data silos into a data commons: convergence to support translational medicine.


ABSTRACT:

Background

To drive translational medicine, modern day biobanks need to integrate with other sources of data (clinical, genomics) to support novel data-intensive research. Currently, vast amounts of research and clinical data remain in silos, held and managed by individual researchers, operating under different standards and governance structures; a framework that impedes sharing and effective use of data. In this article, we describe the journey of British Columbia's Gynecological Cancer Research Program (OVCARE) in moving a traditional tumour biobank, outcomes unit, and a collection of data silos, into an integrated data commons to support data standardization and resource sharing under collaborative governance, as a means of providing the gynecologic cancer research community in

SUBMITTER: Asiimwe R 

PROVIDER: S-EPMC8645144 | biostudies-literature | 2021 Dec

REPOSITORIES: biostudies-literature