Quality of life and disease experience in patients with heart failure with reduced ejection fraction in Spain: a mixed-methods study.

ABSTRACT:

Objectives

To gather insights on the disease experience of patients with heart failure (HF) with reduced ejection fraction (HFrEF), and assess how patients' experiences and narratives related to the disease complement data collected through standardised patient-reported outcome measures (PROMs). Also, to explore new ways of evaluating the burden experienced by patients and caregivers.

Design

Observational, descriptive, multicentre, cross-sectional, mixed-methods study.

Setting

Secondary care, patient's homes.

Participants

Twenty patients with HFrEF (New York Heart Association (NYHA) classification I-III) aged 38-85 years.

Measures

PROMs EuroQoL 5D-5L (EQ-5D-5L) and Kansas City Cardiomyopathy Questionnaire and patient interview and observation.

Results

SUBMITTER: Rubio R 

PROVIDER: S-EPMC8647550 | biostudies-literature | 2021 Dec

REPOSITORIES: biostudies-literature