International guidelines for self-report and proxy completion of paediatric health-related quality of life measures: a protocol for a systematic review.

ABSTRACT:

Introduction

Measures of health-related quality of life (HRQoL), accompanied by the values (or utilities) required to estimate quality-adjusted life-years, are crucial for determining health benefits within economic evaluation and health technology assessment. Several generic and condition-specific measures or instruments of HRQoL, accompanied by values, currently exist for application with child populations. However, there is a lack of a structured summary of guidelines and recommendations for applying these measures in practice. This protocol describes a systematic review of guidelines and recommendations for child and proxy completion of child-specific measures of HRQoL. The aims of the review are to (1) identify and summarise published guidelines and recommendations for existin

SUBMITTER: Mpundu-Kaambwa C 

PROVIDER: S-EPMC8655531 | biostudies-literature | 2021 Dec

REPOSITORIES: biostudies-literature