Top 10 (plus 1) research priorities for expectant families and those with children to age 24 months in Alberta, Canada: results from the Family Research Agenda Initiative Setting (FRAISE) priority setting partnership project.

ABSTRACT:

Objective

The study objective was to identify the top 10 research priorities for expectant parents and caregivers of children up to age 24 months.

Design

A priority setting partnership using a modified James Lind Alliance approach was implemented. First, a core steering committee was formed, consisting of 17 parents, clinicians and community agency representatives. Second, through in-person collaboration with steering committee members, we developed and distributed a survey to identify research priorities across 12 topics. In total, 596 participants consented and 480 completed the survey. Survey responses were grouped and themed into codes during a consensus-building workshop with steering committee members (n=18). Research and practice experts were consulted to provide feed

SUBMITTER: Brockway ML 

PROVIDER: S-EPMC8663105 | biostudies-literature | 2021 Dec

REPOSITORIES: biostudies-literature