Racial and Ethnic Disparities in the Research and Care of Hereditary Angioedema Patients in the United States.

ABSTRACT:

Background

Hereditary angioedema (HAE) affects all races and both sexes equally. Minority patients are underrepresented in clinical trials and may be at risk for additional disease burden.

Objectives

To examine racial and ethnic disparities in the research and care of patients with HAE.

Methods

We conducted a retrospective population-based study using TriNetX Diamond Network. International Classification of Diseases, 10th Revision, Current Procedural Terminology, and RxNorm codes identified patients with HAE. The proportions of White, Black, and Hispanic patients with HAE were contrasted with racial and ethnic distributions of patients with HAE in clinical trials. Lifetime prevalence of mental health disorders and HAE treatments was contrasted among different racial a

SUBMITTER: Sylvestre S 

PROVIDER: S-EPMC8671245 | biostudies-literature | 2021 Dec

REPOSITORIES: biostudies-literature