Discontinuation of follow-up care for young people with complex chronic conditions: conceptual definitions and operational components.

ABSTRACT:

Background

A substantial proportion of young people with Complex Chronic Conditions (CCCs) experience some degree of discontinuation of follow-up care, which is an umbrella term to describe a broken chain of follow-up. Discontinuation of follow-up care is not clearly defined, and the great plethora of terms used within this field cannot go unnoticed. Terms such as "lost to follow-up", "lapses in care" and "care gaps", are frequently used in published literature, but differences between terms are unclear. Lack of uniformity greatly affects comparability of study findings. The aims of the present study were to (i) provide a systematic overview of terms and definitions used in literature describing discontinuation of follow-up care in young people with CCC's; (ii) to clarify operation

SUBMITTER: Skogby S 

PROVIDER: S-EPMC8672472 | biostudies-literature | 2021 Dec

REPOSITORIES: biostudies-literature