Longitudinal Development of Health-related Quality of Life and Fatigue in Children on Home Parenteral Nutrition.

ABSTRACT:

Objectives

The aim of the study was to describe the longitudinal development of health-related quality of life (HRQOL) and fatigue in children with chronic intestinal failure (CIF) on home parenteral nutrition (PN) and compare these children to the general population.

Methods

Prospective, observational study conducted over 7 years in patients suffering from CIF receiving home PN from 2 tertiary hospitals in the Netherlands. Every 6 months, parents (if child <8 years old) or patients (if child ≥8 years old) completed 2 questionnaires: Pediatric Quality of Life Inventory 4.0 (PedsQL) Generic and Fatigue on the KLIK (kwaliteit van leven in kaart [Dutch Acronym for Quality of Life in Clinical Practice]) Patient Reported Outcome Measures portal, which were compared with the gener

SUBMITTER: Nagelkerke SCJ 

PROVIDER: S-EPMC8673843 | biostudies-literature | 2022 Jan

REPOSITORIES: biostudies-literature