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A qualitative exploration of how gender and relationship shape family caregivers' experiences across the Alzheimer's disease trajectory.


ABSTRACT: Caregiving experiences are not static. They change across the disease trajectory and care continuum. However, it is not clear how caregiver gender or relationship type is related to evolving caregiver experiences over time. This qualitative study informed by constructivist grounded theory and framework analysis explored the experiences over time of men and women who were adult children and spousal caregivers to persons with Alzheimer's disease. Forty spousal (10 husbands and 10 wives) and adult children (10 sons and 10 daughters) caregivers to persons with Alzheimer's disease were interviewed using a semi-structured interview guide. Our findings suggest the experiences of caregiving, examined through a gender and relationship type lens, are complex and variable. The caregiving experience w

SUBMITTER: Kokorelias KM 

PROVIDER: S-EPMC8678646 | biostudies-literature | 2021 Nov

REPOSITORIES: biostudies-literature