Design and methods for understanding the state of cystic fibrosis care amid the COVID-19 pandemic.

ABSTRACT:

Background

Novel therapies have dramatically changed cystic fibrosis (CF) and innovative care delivery systems are needed to meet future patient needs. Telehealth has been shown to be an efficient and desirable form of care delivery. The COVID-19 pandemic caused a rapid shift to telehealth, and this presented a unique opportunity to study facilitators, barriers, and satisfaction with this mode of care delivery. We aim to report survey methods, demographics and telehealth use among CF care programs, patients, and families during the pandemic.

Methods

CF programs completed two surveys between July 29 and September 18, 2020, and between April 19 and May 19, 2021. Patients and families completed a similar survey between August 31 and October 30, 2020. The surveys addressed topic

SUBMITTER: Dowd C 

PROVIDER: S-EPMC8683121 | biostudies-literature | 2021 Dec

REPOSITORIES: biostudies-literature