Upper Limb Rehabilitation in Facioscapulohumeral Muscular Dystrophy: A Patients' Perspective.

ABSTRACT:

Objective

To identify (1) what exercise modalities people living with facioscapulohumeral muscular dystrophy (FSHD) are undertaking in the community as a part of their ongoing rehabilitation and (2) what future research projects would gain the support of people with FSHD.

Design

An online questionnaire composed of open and closed questions. Conventional content analysis was used for open questions, and quantitative analysis was used for closed questions.

Setting

Online questionnaire distributed to a United Kingdom FSHD registry.

Participants

A total of 232 patients on the United Kingdom FSHD registry (N=232).

Interventions

None.

Main outcome measures

None.

Results

A response rate of 43.6% was achieved with 232 of 532 patients completing the

SUBMITTER: Faux-Nightingale A 

PROVIDER: S-EPMC8683863 | biostudies-literature | 2021 Dec

REPOSITORIES: biostudies-literature