Care for capabilities: Implementing the capability approach in rehabilitation of patients with neuromuscular diseases. Study protocol of the controlled before-after ReCap-NMD study.

ABSTRACT:

Background

High quality care of patients with neuromuscular diseases requires a personalised approach that focuses on achieving and maintaining a level of functioning that enables them to be in a state of well-being. The capability approach states that well-being should be understood in terms of capabilities, the substantial opportunities that people have to be and do things they have reasons to value. In this Rehabilitation and Capability care for patients with Neuromuscular diseases (ReCap-NMD) study, we want to investigate whether providing care based on the capability approach (capability care) has an added value in the rehabilitation of patients with neuromuscular diseases (NMD).

Methods

Two groups of 30 adult patients with facioscapulohumeral muscular dystrophy or myot

SUBMITTER: Bloemen B 

PROVIDER: S-EPMC8691629 | biostudies-literature | 2021

REPOSITORIES: biostudies-literature