Unknown

Dataset Information

0

Barriers and facilitators to qualitative data sharing in the United States: A survey of qualitative researchers.


ABSTRACT: Qualitative health data are rarely shared in the United States (U.S.). This is unfortunate because gathering qualitative data is labor and time-intensive, and data sharing enables secondary research, training, and transparency. A new U.S. federal policy mandates data sharing by 2023, and is agnostic to data type. We surveyed U.S. qualitative researchers (N = 425) on the barriers and facilitators of sharing qualitative health or sensitive research data. Most researchers (96%) have never shared qualitative data in a repository. Primary concerns were lack of participant permission to share data, data sensitivity, and breaching trust. Researcher willingness to share would increase if participants agreed and if sharing increased the societal impact of their research. Key resources to increase willingness to share were funding, guidance, and de-identification assistance. Public health and biomedical researchers were most willing to share. Qualitative researchers need to prepare for this new reality as sharing qualitative data requires unique considerations.

SUBMITTER: Mozersky J 

PROVIDER: S-EPMC8719660 | biostudies-literature | 2021

REPOSITORIES: biostudies-literature

altmetric image

Publications

Barriers and facilitators to qualitative data sharing in the United States: A survey of qualitative researchers.

Mozersky Jessica J   McIntosh Tristan T   Walsh Heidi A HA   Parsons Meredith V MV   Goodman Melody M   DuBois James M JM  

PloS one 20211231 12


Qualitative health data are rarely shared in the United States (U.S.). This is unfortunate because gathering qualitative data is labor and time-intensive, and data sharing enables secondary research, training, and transparency. A new U.S. federal policy mandates data sharing by 2023, and is agnostic to data type. We surveyed U.S. qualitative researchers (N = 425) on the barriers and facilitators of sharing qualitative health or sensitive research data. Most researchers (96%) have never shared qu  ...[more]

Similar Datasets

| S-EPMC11566659 | biostudies-literature
| S-EPMC7357993 | biostudies-literature
| S-EPMC7146247 | biostudies-literature
| S-EPMC5793947 | biostudies-literature
| S-EPMC10771089 | biostudies-literature
| S-EPMC10825062 | biostudies-literature
| S-EPMC10019561 | biostudies-literature
| S-EPMC11572137 | biostudies-literature
| S-EPMC9647281 | biostudies-literature
| S-EPMC7678081 | biostudies-literature