A Focus Group Study of Self-Management in Patients With Glomerular Disease.

ABSTRACT:

Introduction

Patients with glomerular disease experience symptoms that impair their physical and mental health while managing their treatments, diet, appointments and monitoring general and specific indicators of health and their illness. We sought to describe the perspectives of patients and their care partners on self-management in glomerular disease.

Methods

We conducted 16 focus groups involving adult patients with glomerular disease (n = 101) and their care partners (n = 34) in Australia, Hong Kong, the United Kingdom, and United States. Transcripts were analyzed thematically.

Results

We identified the following 4 themes: empowered in autonomy (gaining confidence through understanding, taking ownership of disease and treatment, learning a positive h

SUBMITTER: Carter SA 

PROVIDER: S-EPMC8720796 | biostudies-literature | 2022 Jan

REPOSITORIES: biostudies-literature