Development of a standards-based phenotype model for gross motor function to support learning health systems in pediatric rehabilitation.

ABSTRACT:

Introduction

Research and continuous quality improvement in pediatric rehabilitation settings require standardized data and a systematic approach to use these data.

Methods

We systematically examined pediatric data concepts from a pediatric learning network to determine capacity for capturing gross motor function (GMF) for children with Cerebral Palsy (CP) as a demonstration for enabling infrastructure for research and quality improvement activities of an LHS. We used an iterative approach to construct phenotype models of GMF from standardized data element concepts based on case definitions from the Gross Motor Function Classification System (GMFCS). Data concepts were selected using a theory and expert-informed process and resulted in the construction of four phenotype mode

SUBMITTER: Koscielniak N 

PROVIDER: S-EPMC8753308 | biostudies-literature | 2022 Jan

REPOSITORIES: biostudies-literature