A qualitative study of epilepsy self-management barriers and facilitators in Black children and caregivers in Arkansas.

ABSTRACT:

Objectives

To identify facilitators and barriers of epilepsy self-management practices among Black children and caregivers.

Methods

Qualitative semi-structured in-depth interviews were conducted with 11 child-caregiver dyads (11 children with epilepsy and 11 caregivers). A deductive-inductive analysis was undertaken to describe the range of barriers and facilitators significant to participants.

Results

The barriers and facilitators were classified into 3 management themes: epilepsy-specific knowledge and information, treatment, and lifestyle. Within these themes, several important subthemes were identified. Two subthemes related to knowledge barriers emerged: children and caregivers' limited understanding and retention of complex written and spoken information and var

SUBMITTER: Samanta D 

PROVIDER: S-EPMC8764703 | biostudies-literature | 2022 Jan

REPOSITORIES: biostudies-literature