Patient experience of diagnosis and management of spontaneous intracranial hypotension: a cross-sectional online survey.

ABSTRACT:

Objectives

To present the results of a survey of patients with spontaneous intracranial hypotension (SIH) secondary to spinal cerebrospinal fluid (CSF) leak, documenting the patient experience of its diagnosis and management as well as quantifying its impact on quality of life.

Design

A cross-sectional anonymous online survey was designed in conjunction with the CSF Leak Association patient charity. The survey included questions on diagnosis, investigations and treatments received, as well as validated disability and quality of life questionnaires.

Participants

Sixty-four patients with a confirmed diagnosis of SIH who were receiving treatment within the UK were included in the analysis. The mean age was 42.8 years, 94% were female and 43 had ongoing symptoms of SIH.

SUBMITTER: Cheema S 

PROVIDER: S-EPMC8783814 | biostudies-literature | 2022 Jan

REPOSITORIES: biostudies-literature