Dataset Information

What matters for people with brain cancer? Selecting clinical quality indicators for an Australian Brain Cancer Registry.

ABSTRACT:

Background

The goal of a clinical quality registry is to deliver immediate gains in survival and quality of life by delivering timely feedback to practitioners, thereby ensuring every patient receives the best existing treatment. We are developing an Australian Brain Cancer Registry (ABCR) to identify, describe, and measure the impact of the variation and gaps in brain cancer care from the time of diagnosis to the end of life.

Methods

To determine a set of clinical quality indicators (CQIs) for the ABCR, a database and internet search were used to identify relevant guidelines, which were then assessed for quality using the AGREE II Global Rating Scale. Potential indicators were extracted from 21 clinical guidelines, ranked using a modified Delphi process completed in 2 rounds by a panel of experts and other stakeholders, and refined by a multidisciplinary Working Group.

Results

Nineteen key quality reporting domains were chosen, specified by 57 CQIs detailing the specific inclusion and outcome characteristics to be reported.

Conclusion

The selected CQIs will form the basis for the ABCR, provide a framework for achievable data collection, and specify best practices for patients and health care providers, with a view to improving care for brain cancer patients. To our knowledge, the systematic and comprehensive approach we have taken is a world first in selecting the reporting specifications for a brain cancer clinical registry.

SUBMITTER: Matsuyama M

PROVIDER: S-EPMC8789278 | biostudies-literature | 2022 Feb

REPOSITORIES: biostudies-literature

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Publications

What matters for people with brain cancer? Selecting clinical quality indicators for an Australian Brain Cancer Registry.

Matsuyama Misa M Sachchithananthan Mythily M Leonard Robyn R Besser Michael M Nowak Anna K AK Truran Donna D Vajdic Claire M CM Zalcberg John R JR Gan Hui K HK Gedye Craig C Varikatt Winny W Koh Eng-Siew ES Kichenadasse Ganessan G Sim Hao-Wen HW Gottardo Nicholas G NG Spyridopoulos Desma D Jeffree Rosalind L RL

Neuro-oncology practice 20210831 1

<h4>Background</h4>The goal of a clinical quality registry is to deliver immediate gains in survival and quality of life by delivering timely feedback to practitioners, thereby ensuring every patient receives the best existing treatment. We are developing an Australian Brain Cancer Registry (ABCR) to identify, describe, and measure the impact of the variation and gaps in brain cancer care from the time of diagnosis to the end of life.<h4>Methods</h4>To determine a set of clinical quality indicat ...[more]

PMID: 35096405

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Project description:BackgroundThe purpose of this article is to illustrate the application of an evidence-based, structured performance measurement methodology to identify, prioritize, and (when appropriate) generate new measures of health care quality, using primary care as a case example. Primary health care is central to the health care system and health of the American public; thus, ensuring high quality is essential. Due to its complexity, ensuring high-quality primary care requires measurement frameworks that can assess the quality of the infrastructure, workforce configurations, and processes available. This paper describes the use of the Productivity Measurement and Enhancement System (ProMES) to compile a targeted set of such measures, prioritized according to their contribution and value to primary care.MethodsWe adapted ProMES to select and rank existing primary care measures according to value to the primary care clinic. Nine subject matter experts (SMEs) consisting of clinicians, hospital leaders and national policymakers participated in facilitated expert elicitation sessions to identify objectives of performance, corresponding measures, and priority rankings.ResultsThe SMEs identified three fundamental objectives: access, patient-health care team partnerships, and technical quality. The SMEs also selected sixteen performance indicators from the 44 pre-vetted, currently existing measures from three different data sources for primary care. One indicator, Team 2-Day Post Discharge Contact Ratio, was selected as an indicator of both team partnerships and technical quality. Indicators were prioritized according to value using the contingency functions developed by the SMEs.ConclusionOur article provides an actionable guide to applying ProMES, which can be adapted to the needs of various industries, including measure selection and modification from existing data sources, and proposing new measures. Future work should address both logistical considerations (e.g., data capture, common data/programming language) and lingering measurement challenges, such as operationalizating measures to be meaningful and interpretable across health care settings.

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Dataset Information

What matters for people with brain cancer? Selecting clinical quality indicators for an Australian Brain Cancer Registry.

Background

Methods

Results

Conclusion

Publications

What matters for people with brain cancer? Selecting clinical quality indicators for an Australian Brain Cancer Registry.

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