Motivators and barriers to research participation for individuals with cerebral palsy and their families.

ABSTRACT:

Objective(s)

Our objective was to investigate the motivators and barriers associated with the individual or family decision to participate in cerebral palsy research. Based on this information, we offer suggestions to increase the likelihood of participation in future CP studies.

Methods

A digital survey was administered to stakeholders affected by cerebral palsy across the US. Our analysis focused on variables related to personal interests, travel, and study-specific elements. Statistical tests investigated the effects of responder type, cerebral palsy type, and Gross Motor Function Classification System level on travel and study-specific element variables. Recommendations were informed by responses reflecting the majority of respondents.

Results

Based on 233 respons

SUBMITTER: Zvolanek KM 

PROVIDER: S-EPMC8791530 | biostudies-literature | 2022

REPOSITORIES: biostudies-literature