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The impact of improving haemophilia A management within the Spanish National Healthcare System: a social return on investment analysis.


ABSTRACT:

Background

Haemophilia A (HA) has been associated with poor health-related quality of life and a large economic burden, accentuated by severity, arthropathy, and inhibitors. To meet global standards of care, the management of HA should align with the principles of care outlined by the World Federation of Haemophilia. The aims of the present study were to establish a set of proposals to improve HA management within the Spanish National Health System (SNHS) and to estimate the impact its hypothetical implementation would generate from a clinical, healthcare, economic, and social perspective.

Methods

A multidisciplinary group of experts agreed on a set of 15 proposals to improve HA management within the SNHS. Thereafter, a forecast-type Social Return on Investment analysis was

SUBMITTER: Soto I 

PROVIDER: S-EPMC8793183 | biostudies-literature | 2022 Jan

REPOSITORIES: biostudies-literature