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"I have cancer during COVID; that's a special category": a qualitative study of head and neck cancer patient and provider experiences during the COVID-19 pandemic.


ABSTRACT:

Purpose

The COVID-19 pandemic has drastically changed cancer care delivery strategies. Patients with locally advanced head and neck cancer (LA-HNC) may be particularly affected by the COVID-19 pandemic, as they often undergo treatments that require daily clinic visits (e.g., radiation therapy). The goal of this study was to characterize the lived experience of LA-HNC patients and their healthcare providers during the COVID-19 pandemic.

Methods

LA-HNC patients who completed a full course of chemotherapy and radiation therapy during the COVID19 pandemic (N = 20) and LA-HNC healthcare providers (N = 13) participated in semi-structured interviews. Interviews were audio-recorded, transcribed verbatim, and analyzed for qualitative themes.

Results

The COVID-19 pandemic had a significant impact on patients' overall quality of life and health care. Results were organized in four main themes: (1) increased psychological distress; (2) exacerbated social isolation; (3) added stress in clinic for patients and providers; and (4) delays in health care.

Conclusions

Findings highlight myriad ways LA-HNC patients and providers have been affected by the COVID-19 pandemic. Results can inform the development of supportive interventions to assist LA-HNC in managing COVID-19-related stress and unmet needs related to social isolation and in-clinic support.

SUBMITTER: Kirtane K 

PROVIDER: S-EPMC8799415 | biostudies-literature | 2022 May

REPOSITORIES: biostudies-literature

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Publications

"I have cancer during COVID; that's a special category": a qualitative study of head and neck cancer patient and provider experiences during the COVID-19 pandemic.

Kirtane Kedar K   Geiss Carley C   Arredondo Brandy B   Hoogland Aasha I AI   Chung Christine H CH   Muzaffar Jameel J   Patel Krupal B KB   Gonzalez Brian D BD   Jim Heather S L HSL   Oswald Laura B LB  

Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer 20220129 5


<h4>Purpose</h4>The COVID-19 pandemic has drastically changed cancer care delivery strategies. Patients with locally advanced head and neck cancer (LA-HNC) may be particularly affected by the COVID-19 pandemic, as they often undergo treatments that require daily clinic visits (e.g., radiation therapy). The goal of this study was to characterize the lived experience of LA-HNC patients and their healthcare providers during the COVID-19 pandemic.<h4>Methods</h4>LA-HNC patients who completed a full  ...[more]

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