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Dataset Information

Patient Perspectives on the Long-term Management of Celiac Disease.


ABSTRACT:

Goal

The aim of this study was to survey adults with celiac disease (CD) on the utility of specific aspects of follow-up and on information needs.

Background

Currently, the treatment for CD is strict gluten avoidance. Although this places the onus on the patient for disease management, patient perspectives on CD care have not been formally assessed.

Study

The Manitoba Celiac Disease Cohort prospectively enrolled adults newly diagnosed with CD using serology and histology. At the 24-month study visits, participants rated the utility of aspects of CD care on a 5-point scale anchored by "not at all useful" and "very useful" and the helpfulness of information on CD-related topics on a 6-point scale anchored by "not at all helpful" and "very helpful."

Results

The on

SUBMITTER: Elias ED 

PROVIDER: S-EPMC8800942 | biostudies-literature | 2022 Nov-Dec 01

REPOSITORIES: biostudies-literature