Assessing quality of life in patients with mastocytosis: development of the disease-specific questionnaire.

ABSTRACT:

Introduction

Appropriate and targeted psychological care, as well as psychoeducation covering the disease causes, symptoms, and their management are crucial elements of the therapeutic process in patients with mastocytosis. This care is based on the identification of problematic areas that are of the greatest importance for patients. The quality of life questionnaires available in Poland are designed for the general population; therefore, they do not encompass the specificity of difficulties experienced by people suffering from mastocytosis.

Aim

To develop a questionnaire measuring the quality of life in patients with mastocytosis, and including the issues and symptoms typical for this group.

Material and methods

The study involved 85 patients (57 women and 28 men) su

SUBMITTER: Spolak-Bobryk N 

PROVIDER: S-EPMC8802953 | biostudies-literature | 2021 Dec

REPOSITORIES: biostudies-literature