A roadmap for precision medicine research recruitment: empirical assessment of the public's willingness to participate.

ABSTRACT: Aim: Precision medicine research recruitment poses challenges. To better understand factors impacting recruitment, this study assessed hypothetical willingness, public opinions of and familiarity with precision medicine research. Materials & methods: Adult attendees (n = 942) at the 2017 Minnesota State Fair completed an electronic survey. Results: Few respondents had heard of 'precision medicine' (18%), and familiarity came mostly from media (43%). Fifty-six percent expressed hypothetical willingness to participate in precision medicine research. Significant predictors of willingness were: comfort with unconditional research; perceiving precision medicine research as beneficial, trustworthy and confidential; having a graduate degree; comfort with self- but not family-

SUBMITTER: Moriarty K 

PROVIDER: S-EPMC8803402 | biostudies-literature | 2020 Sep

REPOSITORIES: biostudies-literature