Health-related quality of life of patients with haemophilia: a cross-sectional survey in the Northeast of China.

ABSTRACT:

Introduction

Haemophilia is a hereditary, chronic and haemorrhagic disorder caused by a deficiency in coagulation factors. Long-term spontaneous bleeding of joints and soft tissues can seriously affect the quality of life of patients.

Objective

The study aimed to assess the health-related quality of life (HRQoL) of patients with haemophilia and associated factors.

Methods

A snowball sampling strategy was adopted to select study participants. Eligible participants were those who were 18 years or older and had mild, moderate or severe haemophilia. They were asked to self-complete a questionnaire, collecting data regarding their sociodemographic characteristics, target joint status and HRQoL measured by the EQ-5D-5L(a tool developed by the European quality of life (EuroQ

SUBMITTER: Niu J 

PROVIDER: S-EPMC8808448 | biostudies-literature | 2022 Feb

REPOSITORIES: biostudies-literature