Pediatric Palliative Care Parents' Distress, Financial Difficulty, and Child Symptoms.

ABSTRACT:

Context

Parents of patients with a serious illness experience psychological distress, which impacts parents' wellbeing and, potentially, their ability to care for their children. Parent psychological distress may be influenced by children's symptom burden and by families' financial difficulty.

Objectives

This study examined the associations among parent psychological distress, parent-reported patient symptoms, and financial difficulty, seeking to determine the relative association of financial difficulty and of patient symptoms to parent psychological distress.

Methods

Cross-sectional study of baseline data for 601 parents of 532 pediatric palliative care patients enrolled in a prospective cohort study conducted at seven US children's hospitals. Data included self-rep

SUBMITTER: Boyden JY 

PROVIDER: S-EPMC8816828 | biostudies-literature | 2022 Feb

REPOSITORIES: biostudies-literature