Capitalizing on Central Registries for Expanded Cancer Surveillance and Research.

ABSTRACT:

Background

State central cancer registries are an essential component of cancer surveillance and research that can be enriched through linkages to other databases. This study identified and described state central registry linkages to external data sources and assessed the potential for a more comprehensive data infrastructure with registries at its core.

Methods

We identified peer-reviewed papers describing linkages to state central cancer registries in all 50 states, Washington, DC, and Puerto Rico, published between 2010 and 2020. To complement the literature review, we surveyed registrars to learn about unpublished linkages. Linkages were grouped by medical claims (public and private insurers), medical records, other registries (eg, human immunodeficiency virus/acquired

SUBMITTER: Bradley CJ 

PROVIDER: S-EPMC8820319 | biostudies-literature | 2022 Feb

REPOSITORIES: biostudies-literature