"I Am the Home Care Agency": The Dementia Family Caregiver Experience Managing Paid Care in the Home.

ABSTRACT: As the locus of long-term care in the United States shifts from institutions to the community, paid caregivers (i.e., home health aides, personal care attendants) are providing more hands-on care to persons with dementia living at home. Yet, little is known about how family caregivers engage with paid caregivers. We conducted in-depth, semi-structured interviews (n = 15) with family caregivers, of persons living at home with severe dementia, and enriched our findings with data from a second cohort of family caregivers of persons with dementia (n = 9). Whether paid caregivers were hired privately or employed via a Medicaid-funded agency, family caregivers reported that they needed to manage paid caregivers in the home. Core management tasks were day-to-day monitoring and relationship buildi

SUBMITTER: Reckrey JM 

PROVIDER: S-EPMC8834786 | biostudies-literature | 2022 Jan

REPOSITORIES: biostudies-literature