A New Method to Extract Health-Related Quality of Life Data From Social Media Testimonies: Algorithm Development and Validation.

ABSTRACT:

Background

Monitoring social media has been shown to be a useful means to capture patients' opinions and feelings about medical issues, ranging from diseases to treatments. Health-related quality of life (HRQoL) is a useful indicator of overall patients' health, which can be captured online.

Objective

This study aimed to describe a social media listening algorithm able to detect the impact of diseases or treatments on specific dimensions of HRQoL based on posts written by patients in social media and forums.

Methods

Using a web crawler, 19 forums in France were harvested, and messages related to patients' experience with disease or treatment were specifically collected. The SF-36 (Short Form Health Survey) and EQ-5D (Euro Quality of Life 5 Dimensions) HRQoL surveys we

SUBMITTER: Renner S 

PROVIDER: S-EPMC8838601 | biostudies-literature | 2022 Jan

REPOSITORIES: biostudies-literature