Hungry for Change: The Experiences of People with PKU, and Their Caregivers, When Eating Out.

ABSTRACT: For patients with phenylketonuria (PKU), stringent dietary management is demanding and eating out may pose many challenges. Often, there is little awareness about special dietary requirements within the hospitality sector. This study’s aim was to investigate the experiences and behaviours of people with PKU and their caregivers when dining out. We also sought to identify common problems in order to improve their experiences when eating outside the home. Individuals with PKU or their caregivers residing in the UK were invited to complete a cross-sectional online survey that collected both qualitative and quantitative data about their experiences when eating out. Data were available from 254 questionnaire respondents (136 caregivers or patients with PKU < 18 years and 118 patients with PKU ≥

SUBMITTER: Poole G 

PROVIDER: S-EPMC8839894 | biostudies-literature | 2022 Jan

REPOSITORIES: biostudies-literature