Recruitment for Remote Decentralized Studies in Parkinson's Disease.

ABSTRACT:

Background

Traditional in-person Parkinson's disease (PD) research studies are often slow to recruit and place unnecessary burden on participants. The ongoing COVID-19 pandemic has added new impetus to the development of new research models.

Objective

To compare recruitment processes and outcomes of three remote decentralized observational PD studies with video visits.

Methods

We examined the number of participants recruited, speed of recruitment, geographic distribution of participants, and strategies used to enhance recruitment in FIVE, a cross-sectional study of Fox Insight participants with and without PD (n = 203); VALOR-PD, a longitudinal study of 23andMe, Inc. research participants carrying the LRRK2 G2019S variant with and without PD (n = 277); and AT-HOME PD,

SUBMITTER: Myers TL 

PROVIDER: S-EPMC8842745 | biostudies-literature | 2022

REPOSITORIES: biostudies-literature