Development of models of care coordination for rare conditions: a qualitative study.

ABSTRACT:

Introduction

Improving care coordination for people with rare conditions may help to reduce burden on patients and carers and improve the care that patients receive. We recently developed a taxonomy of different ways of coordinating care for rare conditions. It is not yet known which models of care coordination are appropriate in different situations. This study aimed to: (1) explore what types of care coordination may be appropriate in different situations, and (2) use these findings to develop hypothetical models of care coordination for rare conditions.

Methods

To explore appropriateness of different types of care coordination, we conducted interviews (n = 30), four focus groups (n = 22) and two workshops (n = 27) with patients, carers, healthcare professionals, commissio

SUBMITTER: Walton H 

PROVIDER: S-EPMC8843018 | biostudies-literature | 2022 Feb

REPOSITORIES: biostudies-literature