Applying citizen science to engage families affected by ovarian cancer in developing genetic service outreach strategies.

ABSTRACT: Citizen science (CS) approaches involving non-professional researchers (citizens) as research collaborators has been used infrequently in health promotion generally and specifically, in cancer prevention. Standardized CS approaches may be especially useful for developing communication interventions to encourage families to consider cancer genetic services. We engaged survivors of ovarian cancer and their close relatives as CS collaborators to collect and help interpret data to inform content for a website, printed invitation materials, and short-message reminders. We applied an implementation quality framework, and posed four research questions regarding the feasibility of CS: recruitment, data collection, data quality and evaluation of the experience. CS members were recruited through thr

SUBMITTER: McBride CM 

PROVIDER: S-EPMC8843236 | biostudies-literature | 2022

REPOSITORIES: biostudies-literature