Challenges and improvement needs in the care of patients with central diabetes insipidus.

ABSTRACT: Central diabetes insipidus (CDI) is a rare condition, with significant impact on patient health and well-being. It is a chronic condition which usually requires meticulous long-term care. It can affect both children and adults. There is limited literature considering the needs and challenges inherent in providing high quality care to patients with CDI, across the care pathway. This paper seeks to address this gap by providing a unique and well-rounded understanding of clinical and healthcare systems-related challenges. It draws on insights from the literature, from direct clinical experience contributed by five clinicians as co-authors (providing insights from France, Ireland, Italy, Spain and the United Kingdom), and from patient perspectives provided through interviews with patient repre

SUBMITTER: Teare H 

PROVIDER: S-EPMC8848805 | biostudies-literature | 2022 Feb

REPOSITORIES: biostudies-literature