Participatory codesign of patient involvement in a Learning Health System: How can data-driven care be patient-driven care?

ABSTRACT:

Background

A Learning Health System (LHS) is a model of how routinely collected health data can be used to improve care, creating 'virtuous cycles' between data and improvement. This requires the active involvement of health service stakeholders, including patients themselves. However, to date, research has explored the acceptability of being 'data donors' rather than considering patients as active contributors. The study aimed to understand how patients should be actively involved in an LHS.

Design

Ten participatory codesign workshops were conducted with eight experienced public contributors using visual, collective and iterative methods. This led contributors to challenge and revise not only the idea of an LHS but also revise the study aims and outputs.

Results

The

SUBMITTER: Knowles SE 

PROVIDER: S-EPMC8849220 | biostudies-literature | 2022 Feb

REPOSITORIES: biostudies-literature