Development and Initial Validation of a Novel System to Assess Ichthyosis Severity.

ABSTRACT:

Importance

A comprehensive, user-friendly system to assess global ichthyosis disease burden is imperative to improving the care of patients with ichthyosis, identifying appropriate participants for clinical trials, and quantifying treatment outcomes. To our knowledge, there is currently no validated scale to objectively and systematically measure ichthyosis severity across the entire body.

Objective

To create and evaluate a comprehensive and user-friendly instrument to measure total body ichthyosis severity in adults and children.

Design, setting, participants

In this qualitative study, ichthyosis experts participated in the content development of the Ichthyosis Scoring System (ISS). The body was divided into 10 regions, and Likert scales (0-4) were created to quantif

SUBMITTER: Sun Q 

PROVIDER: S-EPMC8851366 | biostudies-literature | 2022 Apr

REPOSITORIES: biostudies-literature