Dataset Information

The Lived Experience of Physical Separation for Hospice Patients and Families amid COVID-19.

ABSTRACT:

Context

Many hospice patients were physically separated from family members and healthcare professionals during the early COVID-19 pandemic.

Objectives

Researchers sought to describe the lived experience of physical separation for hospice patients and family caregivers who adhered to public health guidelines intended to limit the transmission of COVID-19 in the spring of 2020.

Methods

Researchers performed a secondary analysis of qualitative data collected during a multi-site clinical trial of an intervention that incorporated family caregivers into care plan reviews during biweekly hospice interdisciplinary team meetings. Twenty-eight adult family caregivers of hospice patients with cancer participated in at least one care plan review between March 7, 2020 and June 10, 2020. The final analytic dataset included the transcribed content of 60 care plan reviews, which were analyzed via reflexive thematic analysis.

Results

Hospice patients and their family caregivers experienced physical separation as interrupted care that resulted in the potential for unmet informational, functional, and social and emotional needs. Connection strategies employed to adapt to care interruptions and address patient and caregiver needs were not consistently effective.

Conclusion

Inclusive, innovative connection strategies are needed to ensure that high-quality end-of-life care is provided to hospice patients and their family caregivers when physical presence must be limited.

SUBMITTER: Washington KT

PROVIDER: S-EPMC8856963 | biostudies-literature | 2022 Jun

REPOSITORIES: biostudies-literature

ACCESS DATA

Publications

The Lived Experience of Physical Separation for Hospice Patients and Families amid COVID-19.

Washington Karla T KT Piontek Amy A Jabbari JoAnn J Benson Jacquelyn J JJ Demiris George G Tatum Paul E PE Oliver Debra Parker DP

Journal of pain and symptom management 20220219 6

<h4>Context</h4>Many hospice patients were physically separated from family members and healthcare professionals during the early COVID-19 pandemic.<h4>Objectives</h4>Researchers sought to describe the lived experience of physical separation for hospice patients and family caregivers who adhered to public health guidelines intended to limit the transmission of COVID-19 in the spring of 2020.<h4>Methods</h4>Researchers performed a secondary analysis of qualitative data collected during a multi-si ...[more]

PMID: 35192877

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Project description:ObjectivesThis study aimed to explore the lived experience of Jordanian front-line healthcare workers (FHCWs), including their experienced challenges and adaptations amid the COVID-19 pandemic.DesignA phenomenological qualitative design was used to highlight the experiences of a sample Jordanian FHCWs during the COVID-19 pandemic. Qualitative interviews were conducted using a semistructured guide with open-ended questions, audiotaped and then transcribed verbatim. Thematic analysis of the transcribed narratives was conducted using an open coding line by line to develop themes and related subthemes.SettingMobile COVID-19 testing and contact tracing units during an active surge of cases in Jordan between May and September 2020.ParticipantsParticipants were recruited using purposive sampling method and consisted of 15 FHCWs (2 physicians, 10 nurses, 2 paramedics and 1 laboratory technician) who have worked in testing and contact tracing teams in the community and have dealt with suspected or confirmed cases of COVID-19 infection.ResultsParticipant narratives were classified into two main overarching themes; challenges and adaptation themes. The challenges theme was exhibited as follows: (1) an excruciating encounter with an invisible enemy, (2) distorted knowledge about COVID-19 and (3) organisational and administrative challenges. The adaptation theme was exhibited as follows: (1) seeking relevant knowledge about the disease and (2) seeking more connectedness.ConclusionsThe COVID-19 pandemic exerted many challenges for FHCWs at multiple levels; intrapersonal and interpersonal, organisational and societal levels. Nevertheless, a number of adaptation strategies within these levels have been reported. This study helps to provide the base on which healthcare officials and public health personnel can formulate preparedness plans that tackle challenges faced by front-line workers, which ultimately enhance the resilience of healthcare systems to withstand future pandemics.

Dataset Information

The Lived Experience of Physical Separation for Hospice Patients and Families amid COVID-19.

Context

Objectives

Methods

Results

Conclusion

Publications

The Lived Experience of Physical Separation for Hospice Patients and Families amid COVID-19.

Similar Datasets

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