Parents' decision-making for their foetus or neonate with a severe congenital heart defect.

ABSTRACT:

Background

Parents who receive a diagnosis of a severe, life-threatening CHD for their foetus or neonate face a complex and stressful decision between termination, palliative care, or surgery. Understanding how parents make this initial treatment decision is critical for developing interventions to improve counselling for these families.

Methods

We conducted focus groups in four academic medical centres across the United States of America with a purposive sample of parents who chose termination, palliative care, or surgery for their foetus or neonate diagnosed with severe CHD.

Results

Ten focus groups were conducted with 56 parents (M_age = 34 years; 80% female; 89% White). Results were constructed around three domains: decision-making approaches; val

SUBMITTER: Delaney RK 

PROVIDER: S-EPMC8857292 | biostudies-literature | 2022 Jun

REPOSITORIES: biostudies-literature