Experience of clinical services shapes attitudes to mental health data sharing: findings from a UK-wide survey.

ABSTRACT:

Background

Routinely-collected mental health data could deliver novel insights for mental health research. However, patients' willingness to share their mental health data remains largely unknown. We investigated factors influencing likelihood of sharing these data for research purposes amongst people with and without experience of mental illness.

Methods

We collected responses from a diverse sample of UK National Health Service (NHS) users (n = 2187) of which about half (n = 1087) had lifetime experience of mental illness. Ordinal logistic regression was used to examine the influence of demographic factors, clinical service experience, and primary mental illness on willingness to share mental health data, contrasted against physical health data.

Results

There was a h

SUBMITTER: Kirkham EJ 

PROVIDER: S-EPMC8858475 | biostudies-literature | 2022 Feb

REPOSITORIES: biostudies-literature