Understanding the Information Needs of Patients With Ovarian Cancer Regarding Genetic Testing to Inform Intervention Design: Interview Study.

ABSTRACT:

Background

Experts in gynecological cancer care recommend that all patients with invasive or high-grade ovarian cancer (OC) undergo genetic testing. However, even patients who intend to take or have taken genetic tests have many unaddressed information needs regarding genetic testing. Existing genetic counseling falls short of adequately addressing this challenge.

Objective

This study aims to investigate the genetic testing-related information needs of patients with OC to inform the design of interactive technology-based interventions that can enhance communication of genetic testing information to patients.

Methods

We interviewed 20 patients with OC who had taken genetic tests and gathered genetic testing-related messages from an active OC web-based community. The in

SUBMITTER: Zhang Y 

PROVIDER: S-EPMC8864522 | biostudies-literature | 2022 Feb

REPOSITORIES: biostudies-literature