Findability of UK health datasets available for research: a mixed methods study.

ABSTRACT: How health researchers find secondary data to analyse is unclear. We sought to describe the approaches that UK organisations take to help researchers find data and to assess the findability of health data that are available for research. We surveyed established organisations about how they make data findable. We derived measures of findability based on the first element of the FAIR principles (Findable, Accessible, Interoperable, Reproducible). We applied these to 13 UK health datasets and measured their findability via two major internet search engines in 2018 and repeated in 2021. Among 12 survey respondents, 11 indicated that they made metadata publicly available. Respondents said internet presence was important for findability, but that this needed improvement. In 2018, 8 out of 13 dat

SUBMITTER: Griffiths E 

PROVIDER: S-EPMC8867248 | biostudies-literature | 2022 Feb

REPOSITORIES: biostudies-literature