Using a Patient Portal to Increase Enrollment in a Newborn Screening Research Study: Observational Study.

ABSTRACT:

Background

Many research studies fail to enroll enough research participants. Patient-facing electronic health record applications, known as patient portals, may be used to send research invitations to eligible patients.

Objective

The first aim was to determine if receipt of a patient portal research recruitment invitation was associated with enrollment in a large ongoing study of newborns (Early Check). The second aim was to determine if there were differences in opening the patient portal research recruitment invitation and study enrollment by race and ethnicity, age, or rural/urban home address.

Methods

We used a computable phenotype and queried the health care system's clinical data warehouse to identify women whose newborns would likely be eligible. Research recr

SUBMITTER: Gehtland LM 

PROVIDER: S-EPMC8874929 | biostudies-literature | 2022 Feb

REPOSITORIES: biostudies-literature