Empowering rare disease patients through patient education: the new BehceTalk programme.

ABSTRACT:

Background

Educating patients and caregivers on their disease can improve their knowledge and promote the active involvement in the therapeutic decision-making process. Naturally, patient education programmes are critically important in rare systemic autoimmune diseases, where relevant knowledge and expertise still remain scattered. Behçet's disease (BD) represents a challenging rare condition, characterized by a variable spectrum of disease profile and a relapsing course.

Results

Recently, BehçeTalk, an educational programme tailored for BD patients, families and caregivers with, was launched. BehçeTalk, entirely co-designed with BD patients, is offering educational on-line webinars on different aspects of the disease, as well support groups for patients and caregivers coor

SUBMITTER: Marinello D 

PROVIDER: S-EPMC8883708 | biostudies-literature | 2022 Feb

REPOSITORIES: biostudies-literature