Patient journey during and after a pre-eclampsia-complicated pregnancy: a cross-sectional patient registry study.

ABSTRACT:

Objectives

To gain insight into the patient journey through a pre-eclampsia-complicated pregnancy.

Design

Cross-sectional patient registry study.

Setting

Online patient registry initiated by the Preeclampsia Foundation.

Participants

Women with a history of pre-eclampsia enrolled in The Preeclampsia Registry (TPR).

Primary and secondary outcome measures

Retrospective patient-reported experience measures concerning awareness of pre-eclampsia, timing and type of information on pre-eclampsia received, involvement in decision making regarding medical care, mental/emotional impact of the pre-eclampsia-complicated pregnancy and impact on future pregnancy planning.

Results

Of 3618 TPR-participants invited to complete the Patient Journey questionnaire, dat

SUBMITTER: Bijl RC 

PROVIDER: S-EPMC8896051 | biostudies-literature | 2022 Mar

REPOSITORIES: biostudies-literature