Physicians' knowledge on specific rare diseases and its associated factors: a national cross-sectional study from China.

ABSTRACT:

Background

Rare disease patients often experience diagnosis delays or misdiagnosis, which may be due to lack of knowledge on rare diseases among physicians.

Objective

To assess Chinese physicians' knowledge on specific rare diseases and identify its associated factors.

Methods

Thirty-four patient organizations with a unique disease of interest were invited to develop 3 knowledge questions for each rare disease to assess physicians' knowledge on the disease that they felt most experienced in. The total knowledge score for each participant ranged from a score of 0 to 3. A national cross-sectional study conducted in a cohort of 3197 physicians from 6 provinces across western, central and eastern China. The demographic information of the participants was collected includi

SUBMITTER: Zhang H 

PROVIDER: S-EPMC8898513 | biostudies-literature | 2022 Mar

REPOSITORIES: biostudies-literature