Developing a National Minimum Data Set for Kawasaki Disease Registry in Iran.

ABSTRACT:

Background

Kawasaki Disease is an acute and self-limited systemic inflammatory and febrile illness, which is the most common cause of acquired heart disease in children in developed countries. The incidence of KD in Asian countries is high. But, data is not available from the Middle East. So, the aim of this study was to develop an MDS to set up a national registry for KD to estimate the burden of disease in Iran.

Materials and methods

This cross-sectional and descriptive study was conducted in 2020. Literature review, data collection from patients medical records, and expert panel approach were used to design this MDS. Data elements with a Content Validity Ratio (CVR) of more than 0.56 were selected as the MDS of the registry.

Results

Overall, 99 data elements were r

SUBMITTER: Qazizadeh Z 

PROVIDER: S-EPMC8919186 | biostudies-literature | 2022

REPOSITORIES: biostudies-literature