Assessment of skin disease in scleroderma: Practices and opinions of investigators studying scleroderma.

ABSTRACT:

Background

The modified Rodnan skin score is a common primary outcome measurement tool in clinical trials of systemic sclerosis (scleroderma). However, it is unknown how often physicians perform the modified Rodnan skin score in clinical practice or what precise approach is most often used when assessing each of the 17 sites included in the modified Rodnan skin score (i.e. "maximizing," "averaging," "representative area"). This study assessed the experiences, perceptions, training, and practices of individuals studying scleroderma with regard to modified Rodnan skin score.

Methods

An invitation with an online survey link was sent electronically to 282 individuals who are part of the Scleroderma Clinical Trials Consortium. The 46-item survey included three sections: participa

SUBMITTER: Showalter K 

PROVIDER: S-EPMC8922616 | biostudies-literature | 2020 Oct

REPOSITORIES: biostudies-literature