Requirements for systemic sclerosis expert centres in the Netherlands: A Delphi consensus study.

ABSTRACT:

Introduction

Systemic sclerosis is a rare and complex disease. Optimal management of patients requires knowledge and experience and, importantly, intensive collaboration between hospitals and multidisciplinary teams. Definition and recognition of expert centres in systemic sclerosis is currently lacking, which complicates collaboration between centres and leaves patients poorly informed. The aim of this study was to develop a set of requirements for two types of systemic sclerosis centres in order to establish a nationwide structure for an optimal and transparent organization of care.

Methods

A three-round Delphi study was conducted among a panel of rheumatologists working at university or regional hospitals across the Netherlands. Prior to the final consensus round, a sessi

SUBMITTER: Spierings J 

PROVIDER: S-EPMC8922637 | biostudies-literature | 2021 Feb

REPOSITORIES: biostudies-literature